Just want to share this NYTimes article, How Long Have I Got Left?, because it is so beautifully written and insightful. My favorite quote is:
“I began to realize that coming face to face with my own mortality, in a sense, had changed both nothing and everything. Before my cancer was diagnosed, I knew that someday I would die, but I didn’t know when. After the diagnosis, I knew that someday I would die, but I didn’t know when. But now I knew it acutely. The problem wasn’t really a scientific one. The fact of death is unsettling. Yet there is no other way to live.”
A couple weeks ago there was a notable controversy in the world of cancer and social media. A husband and wife, both journalists, wrote two separate articles in popular media that questioned the choice of stage IV breast cancer patient Lisa Bonchek Adams’ decision to tweet through her experience. The articles, published in the Guardian and the New York Times, respectively, weren’t overtly nasty but they did call Adams’ tweets things like “the equivalent of deathbed selfies” and say that it may be more heroic to die quietly than to fight cancer to the death.
The Guardian article, by Emma Keller, has been removed, but here is an editor’s note about it. The husband, Bill Keller’s, article is here.
And a wonderful Time Magazine piece about the whole thing can be found here. I wholly agree with one of this article’s points – that if you don’t want to read Adams’ tweets, you don’t have to.
I don’t have anything wildly intelligent or insightful to add to this conversation, but it’s worth sharing. I find there to be so much cancer-shaming in this world – people telling others that they are somehow doing things wrong or making others feel bad or whatever. Heck, I did it myself in the post about the video of the woman who danced before her mastectomy. I think it’s natural for humans to do this, and though I’m not thrilled about it happening in ultra-public forums such as New York Times, I do realize that this is the age of the Internet when everyone has a wide-open land in which to share their views.
Ultimately, everyone’s entitled to their own opinion. Remember my new motto – “feelings are never wrong.” But sometimes, especially if those feelings might hurt others, it’s best to keep them to yourself. And even BETTER than that, is to dig deep within yourself and try to accept that everyone is different and everyone deals differently, and not judge others too harshly if they choose a path that is not the same as yours.
Can’t we all just get along?!? In conclusion, here’s a T-rex covered in snow.
Posted in Blogs, Current events, Personal musings, Uncategorized
Tagged articles, Bill Keller, cancer wars, controversy, Emma Keller, judgment, Lisa Bonchek Adams, news, NYTimes
Go to the New York Times online. Click on “Health”. Guess who that is on the right rocking the bald head? I totally stumbled on this by accident today at work, looking for some articles for my organization’s monthly news brief. What a shock to see a picture of my on the homepage of the NYTimes health section. I’ve always wanted to be in the Times, just didn’t think it would be because of having breast cancer. Still, I’m honored that they thought the photo worthy to represent the whole feature, which you should check out.
It must be said that the photo was taken by the wonderful Rina, another survivor who I met through George Washington University and a photographer.
And in case the page has changed since I wrote this post, here’s a screen shot:
I think maybe all of this publicity is getting to my head (so much so that it’s sprouting hair)!
I just got home from a follow-up appointment with my plastic surgeon. Last Tuesday, she grafted my left nipple into place and today, after dramatically removing the dressings that have been on the whole week, she said, “It’s pink!” and that she was optimistic that the graft would take, though she can’t say for certain just yet that it will. I am feeling good – after all the devastation after my mastectomy with my skin that wasn’t surviving, it’s nice to have some hope that my chest will have a beautiful future. Also, my port is OUT and the scar from its insertion has been cleaned up and looks fantastic. Low-cut shirts, here I come!
Coincidentally, I also received a note from my insurance company today that they will not cover the hyperbaric oxygen treatments I received back when we were trying to save that dying skin. I guess it’s true what they say, just in reverse: when one door opens, another door closes.
In other, extremely exciting news, MY HAIR IS GROWING BACK! You can see a bit of fuzz in this picture, but this was about two weeks ago and now there is quite a bit more hair on my head. I have a defined hairline, and it’s getting darker and longer almost daily (at least that’s what everyone tells me). Eyebrows are pretty much kaput, though, but I’ll take what I can get. More pictures will be forthcoming (as soon as I can locate the USB cord for my camera).
Finally, I wanted to share yet another article inspired by the movie 50/50 – have you seen it yet? It’s about comedy and cancer, and while it jumps around quite a bit (I had a hard time following it, but that might be because I had one of my fave TV shows Hoarders on in the background) it’s a worthwhile read.
Posted in Breast Cancer, Doctors, Humor
Tagged 50/50, article, hair, hair loss, hyperbaric chamber, hyperbaric therapy, mastectomy, nipple, NYTimes, port, reconstruction, scar, skin
Now that I’m done chemo, I don’t feel as inclined to blog. Maybe it’s because I have less to complain about. It could also be that I’m getting back to life and I’m busy with friends and work (which is REALLY busy right now). Either way, I am happy to report that I feel fantastic and am looking forward to my upcoming surgeries in October and December, which will hopefully result in my having a beautiful rack.
Today I have two things to share. One, I’m in the New York Times feature “Picture Your Life After Cancer“! Sure… I submitted myself… but it’s still exciting. Second, the article Breast cancer: patients with mutation diagnosed earlier than previous generation. When I first saw the title of the article, I thought it would be about women getting diagnosed earlier because they start screening earlier in mutation carriers. But the article comes to a different conclusion: that women with the mutation get cancer earlier than the older generations in their family. I think my explanation is better (though who would take my word over the people at MD Anderson). It just makes sense that if women start screening earlier, they’re going to find breast cancer earlier. My mom could have been screened at my age, and perhaps they would have caught her cancer before it was so far gone that there was nothing they could do about it.
Posted in BRCA news, cancer, Clinical stuff, Current events
Tagged BRCA, early screening, genes, genetic, genetic breast cancer, LATimes, life, NYTimes, pictures, screening