April 5th marked three years since my initial surgery. You can read the first post about my double mastectomy here, if you feel so inclined. I didn’t even realize it was an anniversary until the day after; it just goes to show how much distance time can provide. At my oncology follow-up this week (I see her every 6 months now), my doctor talked about recurrence for Triple-Negative Breast Cancer, and cited some information about the highest likelihood of recurrence being in the first 2-3 years from diagnosis (more here). I guess it feels good to know I’ve reached that point, but I have a hard time breathing easy just because of some studies. I still feel like my risk of recurrence is high and I’m not sure that will ever go away.
I felt, on this date, that it was appropriate to share a recent NPR article about NOT having a double mastectomy: Why My Wife Didn’t Choose a Double Mastectomy. Of course, the woman in this article does not carry a BRCA mutation, so her situation is different, but I did want to highlight that mastectomy is not always the best choice, even for people WITH a mutation. When I first learned of my mutation at age 22, I opted not to have surgery and I didn’t plan to even start thinking about surgery until I was at least 30. Looking back, even though I had cancer, I wouldn’t have changed that decision. I think a lot of women get vilified for choosing not to have surgery, and I think it’s important to hear that they are not alone. The choice is so personal and people should be supportive no matter what.
There are many positives to living in Washington, DC, and the excellent metro system is one. Today I was taking the Yellow Line from where I live in Columbia Heights to King Street in Alexandria, Virginia. I rarely ride the Yellow line out of the District, so I was pleasantly reminded about the above-ground bridge over the Potomac River. For a brief minute, you are out of the dark underground tunnel and able to see the beautiful sights of the DC waterfront. Today, this bridge crossing was particularly smile-inducing, because of the sun, blue sky, and crowds of people out and about enjoying the last of the cherry blossoms and the trails hugging the river. Of course, just as you’ve become hypnotized by the Washington and Jefferson monuments and warmed by the sun, you drift back underground, but it makes that brief moment all-the-more magical.
Someone was asking in the Young Survival Coalition Facebook group if anyone had advice to get her through treatment, and one thing I might offer would be to enjoy the small moments when you feel happy. They might be few and far between, but they do happen and it is worth your time to bask in them before they disappear. One such moment, for me, was the week after my first chemotherapy infusion. I had just left my follow-up doctor appointment and was walking through a warm, May day in DC, amazed at how good I felt despite all that was going on. In that moment, I felt strong enough to get through the whole ordeal, and I still remember that happy feeling to this day.
Oh, I guess I should also mention that, since my last post, I hit my two-years-cancer-free mark. It was April 5, 2011, when the tumor was cut out of my right breast. Yay!?!